On May 15th, International MPS Day, our network will launch the second annual “Chase the Signs” campaign, along with each country or regions’ respective MPS day campaigns and activities. The “Chase the Signs” campaign is an industry-sponsored campaign that aims to project the following message:
“In these unprecedented times of the COVID-19 pandemic, our thoughts are with you, the patients, and their families! It is times like these that remind us how important it is to work together to create solutions for our patients, as they are the center of everything that we do.
As a collective of MPS pharmaceutical industry partners, we recognize the often long and difficult journey from the onset of symptoms, to diagnosis, and to treatment. Our patients have complex stories but are all heroes that navigate the maze to reach a proper diagnosis. These stories demonstrate that each of us has a unique role to play, and it is only together that we will make a difference in rare diseases – especially MPS.”
As we approach another MPS Day during a pandemic we have the opportunity to band together to create awareness as an International Network. For this to be possible we are asking for all network members to share photos, videos, stories and/or artwork of your organization, families, caregivers, physicians and community.
Please send your photos and videos, stories and/or artwork for us to share on our social media, by email to: firstname.lastname@example.org
Let’s work together to make the chase global and inclusive on International MPS Awareness Day.
The toolkit and the files of the “Chase the Signs” campaign will be shared in the next few days.